A REALLY bad day...
My left leg and left hip was in extreme pain this AM ( and still is). More than any other day. The pain is in the hipflexer and quad area. I had to leave at 7am for my bone scan appointment in Walnut Creek.
The Honda is a stick shift, I had to use my right had to lift my left leg to hit the clutch...very painful and sure not safe. I HAD to go.
It took me 20 min with a 4 prong cane to walk from the parking garage to the Hospital basement.
When the appointment was made 2 weeks ago I thought no problem. I'll go at 8AM for my shot then shop around downtown Walnut Creek, come back at 11am for the scan, no problem. Instead I sat in the waiting room for 3 hours.
I know, I know some of you are saying "why didnt Suzanne ask for a ride?" Because I had no idea my left leg would be so paralyzed.
Dr Stritter
Wed eve I had the phone consult with Dr Stritter the patient advocate. Barry/Carl was on the call with me. She had many helpful suggestions.
1. I must have a CA125 test each month
2. Try a different doctor at Kaiser Walnut Creek (she gave me a name)
3. Get a phone consult with Harvard or Anderson (both are cancer specialist) regarding using estrogen therapy for treatments instead of chemo. They have recently done these treatments.
4. Go to a specialist for "Inner Active guided Imagery" ( I have a lot of fear)
5. She says its possible to try 10 different things with each working on the cancer/tumor 10%. Meaning 10% X 10 = 100%
6. My tumor from surgery is in a vault at Kaiser. Ask Dr Kaufman( or new doctor) to retrieve it and have it analyzed to see what type of chemo etc would be effective. Cost $800.
7. Melatonion is good for cancer patients. Start with low dose and work up to as much as 20 mg.
I am sure there is more she said, thats all I can get off my notes.
This journey is a rough ride. Each day seems to being something new to challange. One day I'm up next day I'm down.
Tonight I will do nothing, really NOTHING.
If you call I cant return the call till my phone gets fixed. Long story, please contact me by email.
And I look forward to a better day on Friday. My friend Kate is coming to visit and she is always upbeat and fun!
Love, Suzanne, a cancer survivor
My left leg and left hip was in extreme pain this AM ( and still is). More than any other day. The pain is in the hipflexer and quad area. I had to leave at 7am for my bone scan appointment in Walnut Creek.
The Honda is a stick shift, I had to use my right had to lift my left leg to hit the clutch...very painful and sure not safe. I HAD to go.
It took me 20 min with a 4 prong cane to walk from the parking garage to the Hospital basement.
When the appointment was made 2 weeks ago I thought no problem. I'll go at 8AM for my shot then shop around downtown Walnut Creek, come back at 11am for the scan, no problem. Instead I sat in the waiting room for 3 hours.
I know, I know some of you are saying "why didnt Suzanne ask for a ride?" Because I had no idea my left leg would be so paralyzed.
Dr Stritter
Wed eve I had the phone consult with Dr Stritter the patient advocate. Barry/Carl was on the call with me. She had many helpful suggestions.
1. I must have a CA125 test each month
2. Try a different doctor at Kaiser Walnut Creek (she gave me a name)
3. Get a phone consult with Harvard or Anderson (both are cancer specialist) regarding using estrogen therapy for treatments instead of chemo. They have recently done these treatments.
4. Go to a specialist for "Inner Active guided Imagery" ( I have a lot of fear)
5. She says its possible to try 10 different things with each working on the cancer/tumor 10%. Meaning 10% X 10 = 100%
6. My tumor from surgery is in a vault at Kaiser. Ask Dr Kaufman( or new doctor) to retrieve it and have it analyzed to see what type of chemo etc would be effective. Cost $800.
7. Melatonion is good for cancer patients. Start with low dose and work up to as much as 20 mg.
I am sure there is more she said, thats all I can get off my notes.
This journey is a rough ride. Each day seems to being something new to challange. One day I'm up next day I'm down.
Tonight I will do nothing, really NOTHING.
If you call I cant return the call till my phone gets fixed. Long story, please contact me by email.
And I look forward to a better day on Friday. My friend Kate is coming to visit and she is always upbeat and fun!
Love, Suzanne, a cancer survivor
posted by Suzanne at
4:20 PM
1 Comments:
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Suzanne, at 6:26 PM
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